RobertsFamilyBlog

Well, we've been home almost a week, and it's been a tough one! I have been REALLY sick all week - barely making it through the days. It's been hard taking care of a family when all I want to do is be in bed!
Last night Kahlia and I drove up to my parents near Portland to be ready for Kahlia's 7:00am appointment at OHSU this morning. She had to be sedated in order for them to get a good read for her echocardiogram. Even so, it was inconclusive. :-( Her heart is very complicated, and they need another more invasive test done to watch the complete blood flow through her body, but they cannot do that until her body is infection free. So - for now - our most pressing concern is getting her ears completely healed. She had an appointment with the Pediatric ENT dept. at OHSU this afternoon. They put her on a stronger antibiotic with a sterroid in the form of ear drops to see if that will clear her up. The Amoxicillin did nothing to her ears. We have an appt. in 3 weeks to meet with the Pediatric ENT that specializes in cleft palate procedures on children. This is a slow and very hard process. She cried most of the day today - it was hard on both her and me!! But, we made it through the day, we are home, and we just keep taking one day at a time. We also met a nutritionist up there after her Cardiology appt. They want her to up her calories big time - whole milk - even half and half, lots of butter, sour cream, high calorie yogurts, etc. - wish I had that problem! Makenna said, "Mommy, it's the opposite - Kahlia wants to gain weight and you want to lose weight!" Yep - that's about right! :-) Anyway, she is finally sleeping sound in her bed. She has been such a good sleeper. She sleeps about 13 hours at night plus a 2 hour nap during the day. We all love her - the kids adore her, and we all can't wait until she is healthy and strong! :-)