RobertsFamilyBlog

I'm home - safe and sound. :-) SO GLAD to be home and sleep in my own bed. Good news, her O2 stats are up a little - low to mid 80's most of the time. I wasn't able to leave until 3:30. I thought for sure since she arrived with out even a fever that I would be able to leave fairly early today. But things don't go quite like you would think when she is watched closely by 3 different specialists at Doernbecher: ENT, Cardiology, and Endochronology. She has to be "cleared" by all of them and the communication between departments to residents to nurses to me often times is like the old game "telephone". How it starts out isn't exactly what it ends up by time it trickles down to me. First I was told I would be a possible discharge on Monday - I was completely floored being that she arrived perfectly fine. Then I was told that I was indeed going home. The issue was the fact that since the Cath was only 1 1/2 weeks ago, they wanted to make sure that the cause of the fever was not an infection that had gotten in the blood stream during the procedure. They took a blood sample at our hospital here, but we won't know the results until tomorrow. I'm just grateful her fever didn't last long, and I'm sure it was just a little bug that had been going through my family. Everyone but me had been sick through out the week at least for a few hours, so I really wasn't surprised. It's amazing the steps they took just for a fever - I pray she stays healthy and we don't have to go through that again!
Thanks to all of you who "stay in touch" through our blog, and pray for us. Sometimes it's easy to fall into the thought "do my prayers really matter". THEY DO! If I have learned anything through this experience, it is that there really are a lot of people who care about us, who pray for us, and those prayers, I believe, are carrying Kahlia through these months of preparation for her eventual open heart surgery. With all the precautions they take for such seemingly "minor" setbacks, it really scares me at how fragile her little body really is. Fear sneaks in sometimes - wondering how she will do when the time comes for her surgery. Will she be strong enough to withstand the surgery? I/we love her more and more with each day God has given her to us. She is such a huge blessing to us - but there is an underlying fear even in the kids. When I told them yesterday I was taking Kahlia to the Emergency Room, Brendon said, "she's gonna die, isn't she?" Deep down they're all scared, and truthfully, I can't honestly say an adament "no". All we can do is trust the Lord to carry us through this time. He's in charge of her future, and I truly believe He has great plans for her. This is where true trust and faith have to be shown through action. These are very real emotions and tough times for our kids to watch us go through this with Kahlia. But I truly believe that God will be glorified through this process, and they will be stronger spiritually because of this - even at their young ages. They are watching us and how we react, and I want to learn and grow from this whole experience as well.
On the flip side, we have to make sure that ALL our kids' needs are being met - not just Kahlia's. They all need to feel loved and cared for - that's where the balancing act of life comes in. They have to learn to be flexible and unselfish (which are tough lessons to learn sometimes when you're a kid who wants everything your way!), and Scott and I have to learn to be sensitive to their needs so they don't feel left out or not loved as much as Kahlia. I think we're doing an ok job, we just need to keep those communication lines open!! They still ALL adore Kahlia, fight over her, and touch and hold her probably too much. It's good to see their love for her - it makes it easier for them to make sacrifices for her since their love for her is also getting stronger and stronger. God is good. And with that - Good night! :-)